Including results for siris syndrome.
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Coffin Siris Syndrome BICRA Gene Diagnosis at 11 years old #css #conference #raredisease ##autism
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Coffin Siris Syndrome BICRA Gene Diagnosis at 11 years old #css #conference #raredisease ##autism
2.1K viewsJul 17, 2025
YouTubeMarlene | Special Needs Mom & Lifestyle Creator
Replying to @🫶🏼 what is coffin siris syndrome❤️ #coffinsirissyndrome #raregeneticdisorder #geneticdisorder #raredisease #raremama #geneticmutations #autism #GDD #nonspeaking #severeautism #profoundautism #complexneeds #medicalcomplexities | Momlifewithmara
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Replying to @🫶🏼 what is coffin siris syndrome❤️ #coffinsirissyndrome #raregeneticdisorder #geneticdisorder #raredisease #raremama #geneticmutations #autism #GDD #nonspeaking #severeautism #profoundautism #complexneeds #medicalcomplexities | Momlifewithmara
19.7K viewsAug 22, 2025
FacebookMomlifewithmara
Day 5 of the coffin siris syndrome community challenge! Today is “a big milestone” so naturally I’m resharing this reel of one of his more recent milestones. 🥹🩵 #coffinsirissyndromeawareness #coffinsirissyndrome #raredisease #geneticdisorder #raisingrare @coffin_siris_foundation | Momlifewithmara
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Day 5 of the coffin siris syndrome community challenge! Today is “a big milestone” so naturally I’m resharing this reel of one of his more recent milestones. 🥹🩵 #coffinsirissyndromeawareness #coffinsirissyndrome #raredisease #geneticdisorder #raisingrare @coffin_siris_foundation | Momlifewithmara
10.5K views9 months ago
FacebookMomlifewithmara
ARID1B (associated with coffin siris syndrome) is extremely rare and complex and everyone who has an ARID1B mutation is slightly different while also often sharing many similarities and even facial features. Jace actually has two rare genetic mutations but the other one there is even less info on. Follow our journey for more on our daily life!❤️🫶 #geneticdisorder #raregeneticdisorder #arid1b #raredisease #coffinsirissyndrome #globaldevelopmentaldelay #autism #autismdiagnosis #mobilityissues #di
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ARID1B (associated with coffin siris syndrome) is extremely rare and complex and everyone who has an ARID1B mutation is slightly different while also often sharing many similarities and even facial features. Jace actually has two rare genetic mutations but the other one there is even less info on. Follow our journey for more on our daily life!❤️🫶 #geneticdisorder #raregeneticdisorder #arid1b #raredisease #coffinsirissyndrome #globaldevelopmentaldelay #autism #autismdiagnosis #mobilityissues #di
20K viewsJul 20, 2025
FacebookMomlifewithmara
Did you know? Coffin Siris Syndrome awareness: Part 1 #CoffinSirisSyndrome #RareDiseaseAwareness #GeneticDisorders #SupportRareResearch #InclusionAndAcceptance #RareGeneticDisorders #CSSawareness #DisabilityAwareness #RareButNotAlone #CoffinSirisSyndromeAwareness #autismawareness #autismoftiktok | Rebecca Merritt - WynniesWorld
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Did you know? Coffin Siris Syndrome awareness: Part 1 #CoffinSirisSyndrome #RareDiseaseAwareness #GeneticDisorders #SupportRareResearch #InclusionAndAcceptance #RareGeneticDisorders #CSSawareness #DisabilityAwareness #RareButNotAlone #CoffinSirisSyndromeAwareness #autismawareness #autismoftiktok | Rebecca Merritt - WynniesWorld
10.3K views1 year ago
FacebookRebecca Merritt - WynniesWorld
حاله من بين كل مليون حاله Coffin-Siris syndrome
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حاله من بين كل مليون حاله Coffin-Siris syndrome
246 views4 weeks ago
YouTubeمركز أبشر للعلاج الطبيعي
Coffin Siris syndrome will never stop Josiah #fypシ゚viralシfypシ゚ #explore #mom #vlog #momof6 #momlife #sahmsoftiktok #fypシ #fyiシ゚viralシ | Joesmarie Parnell
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Coffin Siris syndrome will never stop Josiah #fypシ゚viralシfypシ゚ #explore #mom #vlog #momof6 #momlife #sahmsoftiktok #fypシ #fyiシ゚viralシ | Joesmarie Parnell
213.3K viewsAug 8, 2025
FacebookJoesmarie Parnell
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January is Coffin-Siris Syndrome Awareness Month. Recently, I’ve been looking back at old videos of Charley. Last night, I came across some from the early months of her life—when I was blissfully unaware that anything was different about my baby girl. I had two daughters under two years old, and I carried so many dreams of what that would look like as they grew up together: best friends, maybe college roommates, standing beside each other in weddings, raising babies together. Never in my wildest
748 views8 months ago
FacebookMadeline Elaine Webb
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Night after night googling and I kept coming back to coffin siris syndrome. I decided to screenshot it because I felt in my gut it was our answer… we found out 2 months later, I was right. Your instinct is a powerful thing, trust it. #coffinsirissyndrome #arid1b #ank2 #autism #globaldevelopmentaldelay #nonspeaking #mobilityissues #geneticdisorder #raregeneticdisorder #raremama #complexneeds #genetictesting | Momlifewithmara
28.6K viewsAug 5, 2025
FacebookMomlifewithmara
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Mara Givenrod on Instagram: "Day 5 of the coffin siris syndrome community challenge! Today is “a big milestone” so naturally I’m resharing this reel of one of his more recent milestones. 🥹🩵 #coffinsirissyndromeawareness #coffinsirissyndrome #raredisease #geneticdisorder #raisingrare @coffin_siris_foundation"
32.4K views9 months ago
Instagrammomlife.withmara
3:52
Children who are special needs are so much more than there disabilities or syndrome. I don’t see coffin Siris syndrome I see JOSIAH #fypシ゚viralシ #fyiシ゚viral #sahmsoftiktok #fypシ #momlife #momof6 #vlog #mom #explore | Joesmarie Parnell
204K viewsSep 7, 2025
FacebookJoesmarie Parnell
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Day 5 of Coffin-Siris Awareness Month! Big Milestones! #raresyndromeawareness #coffinsirisyndrome #coffinsirissyndromeawareness #specialneedsmom
525 views9 months ago
TikTokhannahleigh91
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Romans 8:25- “But, if we have HOPE for what we dont see, we wait for it with patience.” Coffin-Siris Syndrome. One in 10 million. Less than 500 patients worldwide. You my precious boy, are a miracle. You are wvwrything good in this world. & i wouldnt change you for anything. ✨💕😭 #coffinsirissyndrome #specialneedsmom #mamasoftiktok #developmentaldisabilities #developmentaldelay #autism #autismawareness #braindamage #nonverbal #mygoddidnotfail #miracle
894.4K viewsMar 14, 2024
TikTokparrishburgess
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Live streamer syndrome: how teachers can stop performing on stream
231.3K views1 month ago
TikTokdailyaveragemom
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Breakfast vs Lunch at 9 AM: When Your Sibling Demands Lunch
114.4K views1 month ago
TikTokmybrotherjohndp
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Conciencia sobre el Síndrome Coffin-Siris en España
358.2K viewsMay 23, 2024
TikTokjiannarivera2
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Exploring the World of Seris Vritra in TBATE
87K viewsJul 10, 2025
TikToklarnet1
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Coffin-Siris Syndrome: Una Mirada a la Conciencia
99.6K viewsMay 21, 2024
TikTokjiannarivera2
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Happy Mother’s Day, i have a special little gift for Mama. 💙🩷 #SERISMASK #มาส์กปอป้อ #มาส์กหน้า #มาส์กPDRN #poporsapsiree @Seris
24.9K views1 month ago
TikTokpopor_sapsiree
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Cắt tóc cho thầy giáo - Seris Barber (Phần 4)
38.7K views4 months ago
TikTokphibarber.academy
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